Welcome to my blog, I’m a tiny bit ecstatic to share snapshots of my world and still floating from the fumes of getting a new elevated toilet! No, not from those fumes..hehe but the fumes that fuel a greater sense of independence and peace of mind from knowing that I can expend a little less energy and apply it elsewhere should I need it. This is important because I may not have enough spoons to complete all my tasks and remain gracefully intact. File that under #ShitDisabledFolksGetExcitedAbout. Accessibility is a great emancipator in many ways as well as a conservation of energy. *exhales*
I’m grateful for these personal victories of advocacy which help endow a renewed sense of confidence that lead the pathway in pursuing long-term efforts like structural, attitudinal, and policy changes which are often slow, tedious, and meted out over time. Sometimes the index for success is measured by being able to rise from a seated position, shower without slipping, smile after you’ve cried when you realize that you and your comprehensive self are good enough..as is. Other days crawling back in bed and throwing the covers over your head works too since your body and/or mental health may be in need for just that—a quiet day doing absolutely nothing.
Personally, between self-care, care-giving, and advocacy finding balance can sometimes feel like a medieval circus act..like juggling for dear life. And since I fancy myself a queen I retreat to my new “throne” where I rule and reflect in peace…between royal flushes, and fantasize about universal access.